Friday, March 09, 2012

Surgery Date Set

Jess summer of 2011
The phone did finally ring.  The Doc wanted us to come in and talk about what they found as results of the EEG.  It's clear that she's having seizure activity, and told us that she has a mild form of epilepsy.  (Though they are very mild and look like twitches, not the grand mall ones that people most commonly associate with the condition.)  The good news is that the drug they are starting her on has very few side effects and because she's taking a lower dose than most, she has room to tweak the dosage before needing to switch to something else.  But she will likely be on it for the rest of her life.

Also, we discovered that the medication won't interfere with the surgery, but it's important to have her on it before they do it. So with that we were given the nod to set the date.

Monday March 19th she's going in for her pre op meeting, and Wednesday the 21st is the date of the surgery.  We will likely be in the hospital for a week.

Epilepsy and spinal fusion.  It's a lot to process.  It's a lot for anyone to process, let alone a 15 year old.  I like it better when our family drama comes with props, costumes and opening nights. 

On to practicals:  Currently I've rearranged bible studies that meet in our home and written teachers to let them know Jess won't be in school for an extended period of time.

Next on my agenda is to start a schedule of volunteers to catch and pitch the other kids to and from their various activities and school.  Then I suppose I better get caught up on house cleaning and laundry since I'm going to be out of commission while she's in the hospital.

After all this waiting around for it to happen, it feels like it's suddenly happening too fast and I'm scrambling.

I'll keep you all updated with stuff as I know it. 

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